Other Support Services

This list gives links to other sites that you may find helpful. It is not intended to be a complete list of all good sites and inclusion on the list is not intended as recommendation of that site by HDSA, W PA Chapter. If you discover a site that is not here but you feel may be helpful to others, or find a link that no longer functions, please forward that address to Laura Humbert.

These links are loosely organized according to subject.

CAREGIVERS

• Huntington's Disease Advocacy Center
  http://www.hdac.org
• SPINS - Support Programs in Neurodegenerative Services
  http://PINDonline.org
• PIND - Pittsburgh Institute for Neurodegenerative Disease
  http://PINDonline.org
• CareScout
  http://www.carescout.com
• Caregiver
  http://www.caregiver.org
• HD Caregiver's Directory
  http://www.geocities.com/huntingtonsdirectory/index.html
• Caring For People With HD
  http://www.kumc.edu/hospital/huntingtons/
• National Family Caregivers Association
  http://www.nfcacares.org/

LIVING WITH HD

• Jane Paulsen's Book - Understanding Behavioural Changes
  http://www.huntington-assoc.com/jane.html

GRIEF & LOSS

• The Compassionate Friends
  http://www.compassionatefriends.org
  For grief support after the death of a child.
• Coping with Caregiver Grief
  http://www.intelihealth.com/IH/ihtIH?t=9314

GENERAL INFORMATION

• HD CAG Repeat Sizing
  http://www.genetest.com/hd.htm
• Nat'l Instititute of Neurological Disease
  http://www.ninds.nih.gov/
• Office of Rare Diseases
  http://rarediseases.info.nih.gov
• National Institute of Health
  http://www.nih.gov/

© 1997-2004 Huntington Disease Society of America Western PA Chapter
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