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HD News
Monday, November 03, 2008
Two feature articles in USA Today
I would like to make you aware of two feature articles in today's edition of USA Today. The first is on the approval of Xenazine (Tetrabenazine), and the second on Dr. Joseph Jankovic, who we just honored at the Guthrie Awards Dinner in New York last week. Both are available online: Tetrabenazine Article: Copy and paste to web browser, http://www.usatoday.com/news/health/2008-10-27-huntingtons-disease-main_N.htm Dr. Jankovic Article: Copy and paste to web browser, http://www.usatoday.com/news/health/2008-10-27-huntingtons-disease-side_N.htm As you know from previous communications, HDSA was very active in convincing the FDA that chorea is a serious problem for our families, and that the drug, even with its known potential side effects, should be made available so that people would have the option of making an informed choice and the opportunity to improve their quality of life. For those of you who were with us at the hearing, I thank you and for all that helped by writing, calling or emailing, I applaud your efforts. This definitely was a project that the HD community took to heart and it certainly proved that TOGETHER we can make a difference in the lives of our HD families. If you have any further questions about Xenazine, or any suggestions and comments about our continuing advocacy program, please don't hesitate to contact me. Barbara Barbara Boyle, CEO Huntington's Disease Society of America
Monday, May 31, 2010
Friday, April 30, 2010
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Monday, November 03, 2008
Monday, October 20, 2008
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